http://www.downrightfaith.com/weblog How Faith is helping us grow with Downs Thu, 08 Jul 2010 05:42:46 +0000 http://backend.userland.com/rss092 en I LOVE that Sydney has the greatest curlie-Qs in her hair.  They make the cuteste piggie tails ever! http://www.downrightfaith.com/weblog/?p=1152 We had Sydney's ARD (arbitration meeting with the school) and it went really well.  I got the Individual Evaluation Plan (IEP) with the many sets of notes from all of the evaluators (Speech therapist, teacher, daycare providers, ECI specialist and myself).  They did a good evaluation of Sydney.  I had ... http://www.downrightfaith.com/weblog/?p=1150 I feel like we are standing at the foot of Mt Everest, getting ready to start heading up without equipment.  I am and hoping and praying that we are going to find the right people along the way to help equip us with what we need.  This adventure has the ... http://www.downrightfaith.com/weblog/?p=1148 Hopefully life is starting to get under control after a year of turmoil.  My poor blog has been terribly neglected, so I am not sure if anyone is even going to see this.  Every year the families in Central Texas carry on the tradition of taking pictures in the Bluebonnets.  ... http://www.downrightfaith.com/weblog/?p=1138 Today is National Down Syndrome Day on March 21st…  In recognition of the 3 copies of the 21st chromosome.  March 21st aka 3/21)  Although Down syndrome has been around as long as humankind, it was 50 years ago when the cause of Down syndrome was identified.  we have come a LONG ... http://www.downrightfaith.com/weblog/?p=1132 Sydney woke up this morning to a rash all over her body.  Diagnosis? Roseola.  Essentially, it is a virus where a child is contageous for up to 10 days BEFORE the rash... so who knows when or where she got it.  She was in great spirits today, despite the rash.  ... http://www.downrightfaith.com/weblog/?p=1128 This morning we went to the Learning Program for Sydney, then played on the playground for quite a while.  Sydney and Wynter had a great time and us mommies enjoyed the lovely weather and watching our girls play! Playing in the leaves! They are fun to THROW in the air!! The girls are ... http://www.downrightfaith.com/weblog/?p=1120 Anthony was SO excited when he lost his first tooth today!  It was barely hanging on when he came home from school.  Randall assisted with a pair of pliers and out it popped!  Seeing how we just saw the tooth fairy a few weeks ago, who knows what his image ... http://www.downrightfaith.com/weblog/?p=1117 Last Saturday, Anthony and I were sitting on the couch when my husband comes into the room and asks "Where's the dogs?"  This is a typical question, as our front door sticks and it takes some elbow grease make sure it is shut all of the way.  If not, the ... http://www.downrightfaith.com/weblog/?p=1111 Today is the National day to stop the r-word.  You can take the pledge.  What I really want is for people to just stop using the word in everyday speech.  I know that it is difficult to understand the impact this word has on those of us who have children, ... http://www.downrightfaith.com/weblog/?p=1109